Whose ALS is "worse" continued

Reference the previous post. Here is one response, from one of my favorite posters who, interestingly and sadly, was dx'd with arm onset near the time of my dx, but who already has a yellow head, ORANGE arms AND LEGS, and a green trunk:

From the moment of diagnosis forward, every PAL experiences profound and grievous losses. Neverthess, the disease has no direct effect on our capacity to love and to be loved, our ability to project love and kindness into the world, or our capacity to cultivate within ourselves an abiding sense of joy and inner peace.

You can see why he is a favorite.

Another:

The worst case of ALS was in pALS that have already passed away. As long as we are alive, it's not even close.