My friend Kyle died April 7. I met him last year at a support group meeting not long after his dx -- his was bulbar onset. And his progression was rapid.
His breathing was so diminished that he was unable to survive an airline flight to Florida. He didn't die on the plane, however, he died not long after arrival.
On the one hand, he doesn't have ALS anymore. On the other hand, we don't have Kyle -- a good, decent man -- anymore.
It's not right. How I loathe this fucking disease.
1 day ago
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