THE ODDS (Debbie Does ALS)


A Collection Study to Find Biomarkers in Patients with ALS

Dear PatientsLikeMe Member,

Twenty-one NEALS ALS centers across the U.S. are seeking individuals to participate in a specimen collection study.

The purpose of the research study is to collect blood (plasma and DNA) samples from healthy subjects, and both blood (plasma and DNA) and cerebrospinal fluid (CSF) samples from people with amyotrophic lateral sclerosis (ALS), suspected ALS, as well as other neurological disorders, such as Multiple Sclerosis (MS), hereditary spastic paraparesis (HSP), or hereditary neuropathies such as Charcot Marie Tooth disease.

Through comparison of these samples, the researchers hope to learn more about the underlying cause of ALS, as well as find unique biological markers, which could be used to develop new ALS therapies.

Participants must be at least 30 years of age and be able to answer brief questions about their medical and family history, as well as be willing to have blood and/or CSF drawn for the study.

If interested, please visit our website to contact one of our NEALS ALS centers.

- The Northeast ALS Consortium (NEALS)

I'm going to call.

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